Simplifying doctor visits

How to communicate with care teams and advocate for your child’s complex needs with confidence

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Choosing the right provider

Expertise, location, and cost are huge factors when choosing a doctor or therapist for your child. But sometimes, you have more than one option to choose from.

Our Care Team Compatibility Check can help you determine which provider will meet you where you are and feel like a partner to you and your child.

Downloadable tool to help caregiving parents and complex caregivers determine which providers are best for their children
 

Preparing for appointments

Have you ever left a doctor’s appointment and realized you forgot to ask one of your most important questions?

My Appointment Planner is a simple tool to help you prioritize questions, capture visit notes, and make sure you’re crystal clear on next steps when you go home.

Downloadable tool to help caregiving parents and complex caregivers prepare for doctor's appointments
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Advocating for your child

As a key member of your child’s care team, you need to be comfortable asking doctors for clarity; pushing back when advice doesn’t match your reality at home; and asking for more time when you feel rushed.

Our Parent Advocate’s Playbook gives you simple talking points to help you advocate for your child with confidence.

Downloadable tool to help caregiving parents and complex caregivers advocate for their children in medical settings
 

Can waiting rooms be fun for kids?

Doctor’s appointments and hospital visits can be long and sometimes scary for kids. Our Waiting Room Explorer activity sheet is a fun way for you and your child to pass the time together.

If they are with you, it’s also a great way to help brothers and sisters feel included!

Downloadable activity sheet to help make doctor's appointments more fun for kids
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Parents share their stories

 
 

Parent Story

How I Prepare My Heart for My Daughter’s Medical Procedures

Parent Story

My Child’s Voice: How I Became A Better Advocate for My Child

Parent Story

Why I Stopped Judging Other Parents at the Children’s Hospital